Critical Congenital Heart Disease Newborn Screening Demonstration Program
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a) Enhancing and expanding the capacity of state and local public health agencies and hospitals in the process of providing screening, counseling, follow-up check-ups, performing necessary quality assurance, outcome analysis, as well as other public health surveillance functions.

b) Assisting in the process of providing health care professionals and newborn screening program personnel with ample education and knowledge on appropriate newborn screening practices, as well as on emerging technologies intended for critical congenital heart diseases.

c) Developing and administering educational programs that focus on critical congenital heart disease newborn screening, counseling, testing, follow-up, management, and treatment.

d) Establishing, sustaining, and operating a system that could coordinate and evaluate screening programs and follow-up check-ups with regards to critical congenital heart disease patients.

The Health Resources and Services Administration is willing to administer a total amount of $7,000,000 to be equally divided into seven different grant awardees.

The institutions and administrations who will be considered eligible to submit an application under this program are states or political subdivisions of a state, a consortium of two more states, a health facility, or any other entity that possess sufficient expertise in newborn screening.


Critical Congenital Heart Disease Newborn Screening Demonstration Program
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Additional Resources

category - Health Grants

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The Health Resources and Services Administration has recently established the Rural Health Research Center (RHRC) Cooperative Agreement Program in an attempt to substantially improve the amount of high-quality, impartial, policy-relevant research studies.

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Center for Disease Control and Prevention: Training for States on Winnable Battles
The purpose of the Training for States on Winnable Battles program is to enable the CDC to offer training, educational materials, and technical assistance to legislative executives and administrative branches of states.

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Excellence in Hemoglobinopathies Research Award Program
The National Institutes of Health has formed a collaboration with the National Heart, Lung, and Blood Institute (NHLBI) in an effort to establish the Excellence in Hemoglobinopathies Research Award Program wherein both agencies have agreed to financially support the creation of studies that could potentially improve high-impact multi-disciplinary basic and translational research studies in the hemoglobinopathies.

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National Institutes of Health: Expanding the Encyclopedia of DNA Elements in Human and Model Organisms
The National Institutes of Health, in cooperation with the National Human Genome Research Institute, has established a funding opportunity to support the Expanding the Encyclopedia of DNA Elements in Human and Model Organisms project.

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