Critical Congenital Heart Disease Newborn Screening Demonstration Program
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a) Enhancing and expanding the capacity of state and local public health agencies and hospitals in the process of providing screening, counseling, follow-up check-ups, performing necessary quality assurance, outcome analysis, as well as other public health surveillance functions.

b) Assisting in the process of providing health care professionals and newborn screening program personnel with ample education and knowledge on appropriate newborn screening practices, as well as on emerging technologies intended for critical congenital heart diseases.

c) Developing and administering educational programs that focus on critical congenital heart disease newborn screening, counseling, testing, follow-up, management, and treatment.

d) Establishing, sustaining, and operating a system that could coordinate and evaluate screening programs and follow-up check-ups with regards to critical congenital heart disease patients.

The Health Resources and Services Administration is willing to administer a total amount of $7,000,000 to be equally divided into seven different grant awardees.

The institutions and administrations who will be considered eligible to submit an application under this program are states or political subdivisions of a state, a consortium of two more states, a health facility, or any other entity that possess sufficient expertise in newborn screening.


Critical Congenital Heart Disease Newborn Screening Demonstration Program
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Additional Resources



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Leilah Janah is a social entrepreneur popularly known as the CEO of Samasource, a nonprofit organization that works to bring enterprise data services which focus on helping disadvantaged workers. Samasource also makes it possible to change the lives of its workers and their families by helping them find dignified, sustainable work online.




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